Resources

Deliberation Projects

Academic Literature

Publications from Deliberative Democracy Events and Associated Research

Burgess, MM. From ’trust us’ to participatory governance: Deliberative publics and science policy. Public Understanding of Science 2014 23(1): 48-52.

Moore, A. & O’Doherty, K. (2014). Deliberative Voting: Clarifying Consent in a Consensus Process. The Journal of Political Philosophy, 22(3), 302–319.

O'Doherty, K. C. Synthesising the outputs of deliberation: Extracting meaningful results from a public forum.  Journal of Public Deliberation, 9.1 (2013), Article 8. http://www.publicdeliberation.net/jpd/vol9/iss1/art8

O’Doherty, KC. & MM Burgess. Public Deliberation to Develop Ethical Norms and Inform Policy for Biobanks: Lessons learnt and challenges remaining. Research Ethics 9.2 (2013): 55-77. DOI: 10.1177/1747016113488858.

Nep, S. & O’Doherty, KC. Understanding public calls for labeling of GM foods: Analysis of a public deliberation on GM salmon. Society & Natural Resources: An International Journal, 26.5(2013), 506-521. DOI: 10.1080/08941920.2012.716904.

O’Doherty, KC, MK MacKenzie, D Badulescu, MM Burgess. Explosives, Genomics, and the Environment: Conducting Public Deliberation on Topics of Complex Science and Social Controversy. Sage Open 2013 3: DOI: 10.1177/2158244013478951.

Burgess, Michael M. Deriving Policy and Governance from Deliberative Events and Mini-Publics. In Regulating Next Generation Agri-Food Biotechnologies: Lessons from European, North American and Asian Experiences. Ed. Michael Howlett and David Laycock. Routledge, 2012: 220-236.

O'Doherty, K. C., Gauvin, F.-P., Grogan, C., & Friedman, W. (2012). Implementing a Public Deliberative Forum. Hastings Center Report, 42(2), 20-23.

O’Doherty, K. (2012). Theorising Deliberative Discourse. In Kieran O’Doherty & Edna Einsiedel (eds.), Public Engagement and Emerging Technologies (pp. 133-147). Vancouver: UBC Press.

O’Doherty, Kieran C., Alice K. Hawkins, MM. Burgess. Involving citizens in the ethics of biobank research: Informing institutional policy through structured public deliberation. Social Science and Medicine 75 (2012): 1604-1611. http://www.ncbi.nlm.nih.gov/pubmed/22867865

O'Doherty, KC, Tamara Ibrahim, AK Hawkins, MM Burgess, and Peter Watson. Managing the Introduction of Biobanks to Potential Participants: Lessons from a Deliberative Public Forum. Biopreservation and Biobanking, 10.1 (2012): 12-21. DOI: 10.1089/bio.2011.0029. http://uoguelph.academia.edu/KieranODoherty/Papers/1765390/Managing_the_Introduction_of_Biobanks_to_Potential_Participants_Lessons_from_a_Deliberative_Public_Forum

Secko, D. M. Swimming with salmon: The use of journalism to public engagement initiative on emerging biotechnologies. In O'Doherty & Einsiedel (eds.), Public Engagement and Emerging Technologies. Vancouver: UBC Press, 2012: 211-228.

MacKenzie, Michael K & KC O'Doherty. Deliberating Future Issues: Minipublics and Salmon Genomics. Journal of Public Deliberation, 7.1 (2011): Article 5. http://services.bepress.com/jpd/vol7/iss1/art5/

O’Doherty, KC, MM Burgess, K Edwards, R Gallagher, A Hawkins, J Kaye, V McCaffrey, D Winickoff. From Consent to Institutions: Designing Adaptive Governance for Genomic Biobanks. Social Science and Medicine 73 (2011): 367-374. http://www.ncbi.nlm.nih.gov/pubmed/21726926

Walmsley, Heather L. Stock options, tax credits or employment contracts please! The value of deliberative public disagreement about human tissue donation. Social Science & Medicine, 73.1 (2011): 209-216.  DOI: 10.1016/j.socscimed.2011.05.005 http://www.ncbi.nlm.nih.gov/pubmed/21683492

Hawkins, AK, KC O'Doherty. Biobank governance: a lesson in trust. New Genetics & Society, 29.3 (2010): 311-325. DOI: 10.1080/14636778.2010.507487

Longstaff, H & MM Burgess. Recruiting for representation in public deliberation on the ethics of biobanks. Public Understanding of Science 19.2 (2010): 212-24.

http://pus.sagepub.com/cgi/content/abstract/0963662508097626v1

O'Doherty, KC, MM Burgess & DM Secko. Sequencing the salmon genome: A deliberative public engagement. Genomics, Society and Policy 6.1 (2010): 16-33. http://www.hss.ed.ac.uk/genomics/V6N1/documents/ODohertyBurgessSecko.pdf

O’Doherty, KC & Hawkins AK. Structuring Public Engagement for Effective Input in Policy Development on Human Tissue Biobanking, Public Health Genomics, 13.4 (2010): 197-206. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2874727/

O'Doherty, KC., Davidson HJ. Subject Positioning and Deliberative Democracy: Understanding Social Processes Underlying Deliberation. Journal for the Theory of Social Behaviour, 40.2 (2010): 224-245. http://onlinelibrary.wiley.com/doi/10.1111/j.1468-5914.2009.00429.x/abstract           

MacLean, S & MM Burgess. In the Public Interest: Stakeholder Influence in Public Deliberation about Biobanks. Public Understanding of Science 19.4 (2010): 486-496.

http://pus.sagepub.com/cgi/content/abstract/0963662509335410v1

Longstaff, H & Secko, DM. Media Influence on Biobank Deliberations. Journal of Health & Mass Communication, 2 (2010): 73-96. http://www.csjp.ca/wordpress/wp-content/uploads/2011/11/Longstaff_Secko_JHMC_2010.pdf

Walmsley, HL. Biobanking, public consultation, and the discursive logics of deliberation: five lessons from British Columbia. Public Understanding of Science 19.4 (2010): 452-68. http://www.ncbi.nlm.nih.gov/pubmed/20977183

Walmsley, HL. Witnessing genomics : the design, facilitation and evaluation of inclusive deliberative public consultation about biobanking in British Columbia (Canada). Ph.D. thesis. Lancaster University, UK (2010). http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.547973

Walmsley, HL, MM Burgess, J Brinkman, R Hegele, J Wilson-McManus, B McManus. Ethics of biomarkers: where are the borders of investigative research, informed consent and patient protection. Biomarkers in Drug Development: A Handbook of Practice, Application and Strategy. Ed. M Bleravins, R Rahbari, M Jurima-Romet and C Carini. Wiley, 2010: Chapter 35.

Avard, D, LM Bucci, MM Burgess, J Kaye, C Heeney, A Cambon-Thompson. Public Health Genomics and Public Participation: Points to Consider. Journal of Public Deliberation 5.1 (2009): Article 7. OnlIne: http://services.bepress.com/jpd/vol5/iss1/art7/               

Secko, DM, N Preto, S Niemeyer and MM Burgess. Informed Consent in Biobank Research: Fresh Evidence for the Debate. Social Science & Medicine 68.4 (2009): 781-789. http://www.ncbi.nlm.nih.gov/pubmed/19095337                      

O'Doherty, KC & MM Burgess. Engaging the public on biobanks: Outcomes of the BC Biobank Deliberation. Public Health Genomics 12, 4 (2009): 203-215. http://www.ncbi.nlm.nih.gov/pubmed/19367089

Walmsley, HL. Mad scientists bend the frame of biobank governance in British Columbia. Journal of Public Deliberation: 5.1 (2009): Article 6. http://services.bepress.com/jpd/vol5/iss1/art6

Watson, Peter H, Janet E Wilson-McManus, Rebecca O Barnes, Sara C Giesz, Adrian Png, Richard G Hegele, Jacquelyn N Brinkman, Ian R Mckenzie, David G Huntsman, Anne  Junker, Blake Gilks, Eric Skarsgard, MM Burgess, Samuel Aparicio and Bruce McManus. Evolutionary Concepts in Biobanking-The BC BioLibrary. Journal of Translational Medicine 7 (2009): 95. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2785772/

Wilcox, ES. Does "Misinformation" Matter? Exploring the Roles of Technical and Conceptual Inaccuracies In a Deliberative Public Engagement on Biobanks. MA Thesis, Faculty of Graduate Studies, University of British Columbia, Vancouver, BC, Canada (2009). http://hdl.handle.net/2429/17436

Tansey, J & MM Burgess. The meaning of genomics: a focus group study of "interested" and lay classifications of salmon genomics. Public Understanding of Science. 17.4 (2008): 473 - 484. http://www.ncbi.nlm.nih.gov/pubmed/19244868

Burgess, MM, KC O'Doherty, DM Secko. Biobanking in BC: Enhancing discussions of the future of personalized medicine through deliberative public engagement. Personalized Medicine. 5.3 (2008): 285 - 296.                

Secko, DM, MM Burgess, KC O'Doherty. Perspectives on Engaging the Public in the Ethics of Emerging Biotechnologies: From Salmon to Biobanks to Neuroethics. Accountability in Research. 15:4 (2008): 283 - 302. http://www.ncbi.nlm.nih.gov/pubmed/18972267

Wilcox, E. (2008). A Lego model to help inform participants at the British Columbia Biobank Deliberation. Health Law Review 16.4 (2008), 9-11.  http://lawlib.wlu.edu/CLJC/index.aspx?mainid=833&issuedate=2008-09-01&homepage=no

Publications by collaborators on deliberative events and in theoretical literature:

Molster C, Potts A, McNamara B, Youngs L, Maxwell S, Dawkins H, O'Leary P. Informing Public Health Policy Through Deliberative Public Engagement: Perceived Impact on Participants and Citizen-Government Relations. Genet Test Mol Biomarkers. (2013) Jul 17. [Epub ahead of print]. PMID: 23862565

MacKenzie, MK, & Mark . E. Warren. 'Two Trust-Based Uses of Minipublics in Democratic Systems.' In J. Parkinson & J. Mansbridge (Eds.), Deliberative Systems: Deliberative Democracy at the Large Scale. Cambridge: Cambridge University Press (2012): 95-124.

Molster C., Maxwell S., Youngs L., Potts A., Kyne G., Hope F., Dawkins H., O’leary P. An Australian Approach to the Policy Translation of Deliberated Citizen Perspectives on Biobanking. Public Health Genomics 15.2 (2012): 82-91. DOI: 10.1159/000334104

Molster C., Maxwell S., Youngs L., Kyne G., Hope F., Dawkins H., O’Leary P. Blueprint for a deliberative public forum on biobanking policy: were theoretical principles achievable in practice? : Public deliberation for policy development. Health Expectations (2011). DOI: 10.1111/j.1369-7625.2011.00701.x

Submitted or In Press

Burgess, MM & Longstaff, H (in press). Representing the Cultural Significance of Salmon in a West Coast Public Deliberation. In K. Culver & K. O’Doherty (eds.). Fishing and Farming Iconic Species in the Genomics Era: Cod and Salmon. Concord, Ontario: Captus Press, 2014

Cohen, E. & O’Doherty, KC (in press). Perceptions of Salmon Genomics among the Chinese-Canadian and Indo-Canadian Community in BC. In K. Culver & K. O’Doherty (eds.). Fishing and Farming Iconic Species in the Genomics Era: Cod and Salmon. Concord, Ontario: Captus Press, 2014

O’Doherty, KC, H Longstaff, MM Burgess. (in press). Using Deliberative Democracy to Inform Policy on Applications Arising from Salmon Genomics Research. In K. Culver & K. O’Doherty (eds.). Fishing and Farming Iconic Species in the Genomics Era: Cod and Salmon. Concord, Ontario: Captus Press, 2014

Burgess, MM, H Longstaff, KC O’Doherty. (in press). Assessing deliberative design of public input on biobanks. In S. Dodds & R. Ankeny (eds.). Big picture bioethics: developing democratic policy in contested domains. Routledge Press.

Tansey, J & MM Burgess (in press). Complexity of public interest in ethical analysis of Genomics. Genomics and Public Policy: Issues and Perspectives for Canada and the World. Ed. D Castle and K Culver. Vancouver: UBC Press.

Walmsley, H. (under review). From dinosaur clones to infertile super-humans: The temporality of deliberative communication in a promissory bio-democracy. Social Studies of Science.

Burgess, MM, D. Chalmers, K Edwards, J Kaye, E. Meslin. Marking Shifts in Human Research Ethics in the Development of Biobanking. Public Health Ethics (submitted September 2013)

Chalmers, Don, Rebekah E McWhirter, Dianne Nicol, Margaret Otlowski, Michael Burgess, Simon J Foote, Christine Critchley and Joanne L Dickinson. (under revision). New Avenues within Community Engagement: Addressing the Ingenuity Gap in our Approach to Health Research and Future Provision of Health Care. Medical Journal of Australia.